Press · Publications · Interviews · Events
In the Media
Publications, press coverage, podcasts, talks, events, and volunteer work, in English and Portuguese.
Language of each item: English Portuguese French Japanese
Patient Advocacy
Living with FD/MAS: My Story EN
In this conversation with the FD/MAS Alliance, I talk about living with fibrous dysplasia and McCune-Albright syndrome: the diagnosis, the research it led me to, and why I decided to speak about it in public.
I'm a patient, not a physician. For medical information about fibrous dysplasia and McCune-Albright syndrome, see the FD/MAS Alliance's pages on what FD/MAS is and how rare it is.
How to Live Independently with FD/MAS
I co-hosted one of the first global FD/MAS community meetings for the FD/MAS Alliance, sharing practical strategies for living independently with a physical disability from my own daily life with FD/MAS. I have co-hosted further community meetups since.
Official Portuguese Translation and Video Contributions
I produced the official Brazilian Portuguese translation of educational content for the FD/MAS Alliance's social media, and contributed a series of videos in both English and Portuguese sharing my perspective as a patient advocate.
Posts, Reels, and Articles
Podcasts
Interviews, Talks & Events
Recorded Interviews & Panels
Geopolitics Observatory: Aging in East Asia and Lessons for Brazil
Panel Discussion: Work in Japan, What to Expect?
Panel Discussion: Brazil-Asia Cooperation
Graduate Student Meeting in Japanese Studies, Session 6: Education, Heritage and Society
What Can We Learn from Japan's Population Aging
Japan: The First Super-Aged Society
Talks & Lectures
Organizing & Evaluation
Attendee
Events I attended as a participant, to keep learning from the communities and fields I work in.
Show 15 moreShow less
Press Mentions
Publications
Peer-Reviewed · Open Access
Invisible Beings: An Overview of People with Disabilities' Circumstances in Japan
Revista Estudos Japoneses · University of São Paulo (USP) · n. 48, 2022 EN
A translation of the Portuguese original published in issue 44, listed below.
Read the ArticleMarketing Publications
Content Marketing 2023 B2G Marketing: With a Healthy Dose of Parks and Rec EN
Content Marketing 2023 From Zero to WordPress Go-To: My Gutenberg Experience EN
Content Marketing 2023 Employee Profile Interview: Mastering the Marketing Elements EN
Life at Brafton 2022 Football and Holidays: A Golden Marketing Opportunity EN
Content Creation
Volunteer Work
Volunteer work with 23 organizations since 2007, most of them during the COVID-19 pandemic, from 2020 to 2022, as team leader, project manager, teacher, translator, editor, and mentor.
Show 18 moreShow less
Get in Touch
Let's Start a
Conversation
Journalists, event organizers, researchers, brands, and patients and families can reach me through this form. I reply within five business days, in English or Portuguese.